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International Journal of Dermatology, Venereology and Leprosy Sciences
Peer Reviewed Journal

2025, Vol. 8, Issue 2, Part A

The role of social support systems in enhancing community participation of individuals affected by leprosy: Insights from family networks, community groups, and self-help initiatives
Author(s)
Jacinta Tiago Marqueza, Felistus Mwikali and Mary Mutisya
Abstract
Leprosy continues to be a significant public health issue in many low-income countries, including Mozambique, where it causes deep social and economic challenges. This study explored the socioeconomic factors and Participation of people affected by leprosy in community projects in Montepuez District, Cabo Delgado Province. The study specifically aimed to examine the causal relationship between demographic factors-such as age, education, gender, and marital status, and levels of community participation; to assess the extent to which income, employment, and access to resources influence community participation participation; to determine how disease-related characteristics like duration, visible impairments, and disability levels affect participation in community life; and to examine the contribution of social support systems, including family networks, community groups, in facilitating community participation among leprosy affected individuals. Guided by the social exclusion and health belief model theories, the study targeted, 1,200 individuals, including leprosy-affected individuals, community leaders, healthcare providers, and support group members. Using Krejcie and Morgan’s (1970) sample size formula, 291 participants were selected. Data were gathered through structured questionnaires with 142 leprosy-affected individuals, 18 interviews with community leaders and health workers, and four focus group discussions with 28 individuals. Findings revealed generally low community participation. However, younger individuals (18-34 years, OR = 2.67, p = 0.014), those with secondary education or higher (OR = 3.45, p = 0.005), those earning above 1,000 MZN (OR = 3.12, p = 0.012), and employed participants (OR = 2.56, p = 0.017) had significantly higher participation levels. Stigma was a major barrier (r = -0.52, p<0.001), while strong social support encouraged involvement. Qualitative insights showed that self-help groups promoted empowerment, while poverty, disability, and discrimination limited participation. The study recommends strengthening community-based care, expanding economic empowerment initiatives, reducing stigma, improving rural access to services, and tailoring interventions to meet demographic needs.
Pages: 31-42 | Views: 686 | Downloads: 302


International Journal of Dermatology, Venereology and Leprosy Sciences
How to cite this article:
Jacinta Tiago Marqueza, Felistus Mwikali, Mary Mutisya. The role of social support systems in enhancing community participation of individuals affected by leprosy: Insights from family networks, community groups, and self-help initiatives. Int J Dermatol Venereology Leprosy Sci 2025;8(2):31-42. DOI: 10.33545/26649411.2025.v8.i2a.240
International Journal of Dermatology, Venereology and Leprosy Sciences
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